Young couple Connie Yates and Chris Gard have just 31 days to raise their £1.2 million target for a chance to save their son’s life.
They appeared on today’s This Morning to tell their emotional story.
The worried parents have managed to raise £218K so far on their GoFundMe page, but need £1.2 million in order to find the treatment that could save their seven-month-old baby.
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Connie and Chris were overjoyed after adorable Charlie was born in August 2016 after a normal pregnancy.
Then mum Connie noticed that Charlie was losing weight and seemed to have lost his strength.
Speaking to Holly and Phil, she explained: “I took him to our local hospital but he rapidly declined.
“He choked on his milk and, after developing aspiration pneumonia in October, he was transferred to Great Ormond Street, where he has remained in intensive care on life support.
The couple then revealed that was when their son was diagnosed with a rare condition mitochrondrial depletion syndrome.
It’s so rare, in fact, that he is believed to be only the 16th person in the world to have it.
Connie and Chris appeared on the show to help raise money for their fund after facing a High Court battle against hospital doctors who claimed it’s “not in the best interests” to continue life-support.
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The couple revealed that the campaign had consumed their lives, but said Charlie is worth it.
Father Chris said: “We’re very biased because he’s our son, but Charlie is a special child.
Previously speaking about her tot, Connie said: “We can’t just let our baby die when there is hope and treatment available that might help him.
“There is no way we would agree to any treatment which is not dignified for Charlie and we believe he deserves the chance.
“If Charlie receives this treatment and it does work it won’t just be his life that’s saved, it will be many more children in future who are born with this horrible disease.
“If he dies at least we will have done everything we possibly can.
“Like any loving parents, we will do whatever it takes to save our baby’s life.”